Category: Uncategorized
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Mile 16
Accidental Advocacy, Roadie Wisdom; a reflection from Mendy Gomez. In Mendy’s words… I came on this trip with the expectation of meeting persons impacted by ALS. However I’ve experienced something else, moments of accidental advocacy. What do I mean by this? Let me share with you to better illustrate, and this is coming from someone…
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Mile 15
Double nickels, 55! It’s my birthday, let me do what I want, exclaimed Meg! I said don’t do it, you might regret it! Remember San Francisco, I said emphatically. (Links to see what transpired in San Francisco are below) Did she listen to me? No! She did it again! She drove Big Blue into the…
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Mile 14
History was made today, 29 September 2022 in the ALS universe. A new safe drug was approved. But drugs are approved often, that’s not historic. You are very right. Here is the reason it’s so momentous; patients, family members, advocates and scientists. What is significant about these groups of people? They all aggressively encouraged the…
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Mile 13
“First star on the right, till morning…” This is Captain’s log for Landship ALS Inspire (AKA Big Blue), Captain Meg speaking. Today we embark on a two month exploration mission… Yes this is what I envision when I think of my incredible wife the Meg-million, the Meg-atron, Captain Intrepid, I could go on. As I…
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Mile 12
The Roadie Life! Roadie – An individual who is responsible for setting up, tearing down, and generally maintaining the equipment for a band. Allow me to introduce you to our Roadie/Companion/Road cALS: Melinda (Mendy) Heggie Gomez. Mendy hails from Tucson AZ and is a diehard University of Arizona fan, along with her entire family. Mendy…
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Mile 11
Reflections from a powerchair. The folks you meet on the road called life come careening at you and the interaction can be brief, but impactful. Social media is a super highway of sorts; allowing us to intersect with countless individuals. ALS adds a detour, although unique to each of us, we all witness the same…
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Mile 10
Cleanliness is next to godliness… Having traveled through Utah’s red clay terrain in the rain, the RV – Big Blue, was trashed. This simply will not do, by Meg’s standard’s…at all. Ever town we came through she was on the lookout for a truck wash. Town after town Meg’s frustration grew as we couldn’t find…
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Mile 9
Hacks, tips and tricks to living with ALS. At the suggestion of one of the “Juan-a-be’s” (subscriber), I am adding this post for tips & hack’s. You can add your own by leaving a comment. I will start by sharing a few Meg and have learned. • Attaching a kitchen sink spray wand to the…
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Mile 8
It’s not just about ALS, it’s taking a backseat today. We do have destinations and the beauty of the picturesque road’s of this great nation on our bucket list. Traveling from Tucson to Monument Valley we witnessed the rugged terrain alternate between mesas, outcroppings and deep canyon’s. We arrived at Monument Valley at night while…
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Mile 7
The Toll of the ALS road is the passing of friends. It’s a high price to pay but the connections are priceless and the friendships unbreakable. We woke in Monument Valley Utah, to a spectacular landscape and freshly rained terrain. We also woke to our truck battery dead and unbeknownst to us, our truck breaks…
Road Tripping With ALS 