Category: Uncategorized
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Mile 6
CRPLClandestine Racing Powerchair League I’m going to break the first rule of CRPL, and talk about it. What is CRPL? Illegal nighttime powerchair racing; that’s what it is! It’s sweeping the nation, in a whisper– you just don’t know cuz we don’t talk about it, just saying. I had the distinct pleasure of taking on…
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Mile 5
ALS Caregivers… love is enduring the loss of your loved one while they are living. JR Today I had the privilege of enjoying lunch in the company of five courageous souls. Three surviving spouses of ALS, one daughter and of course my caregiver, Meg. Each having their own story of courageously caring for their spouse…
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Mile 4
Mr. & Mrs. Hackman … We set out on this trip towards Tucson AZ, for the sole purpose of attending the wedding of our friends daughter, Talia. Her parents, Tony and Melinda (Mendy) Gomez, whom we met through ALS in San Antonio and are now family. Sadly Tony passed in July; knowing he may not…
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Mile 3
Our initial trip in June was a huge learning curve for Meg and I, to include missing some visits with persons with ALS. One individual that we had arranged to meet and missed was Julie Suarez in El Paso. So this trip we built flex time into the itinerary. We wanted to make sure that…
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Mile 2
The day started with the sun breaking through the RV’s blinds . We quickly prepare to hit the road, but to our surprise, the semi we pulled in behind was still there! Will we have to wait for the driver to wake in order to leave? You will find out in the next episode.. Just…
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Death On Wheels: The Live Tour
Mile 1 Alright, in case you hadn’t figured out the wordplay of our road trip title; it’s not as morbid as you think. But perhaps it may be, you be the judge? As a person living with ALS, I am in fact dying from it, then again, no one is immortal. You’ve heard the term,…
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Road Tripping With ALS
Hi friends, as many of you are aware we are embarking on a Bucket List with a Purpose. Meg and I have loaded our RV, Big Blue, and will be crisscrossing the US to meet others impacted by ALS! Keep up with our travels by subscribing.our itenerary is below. Hey! Check out this trip on…
Road Tripping With ALS 